Dear Professional

I am a child a toddler a little boy, I am neither a case study, nor am I odd.

I am a brother and a son my Mummy and Daddy and big sister know me best they dont follow any advice unless its best for me no matter who said it or wrote it.

I do and I play and I try to run my boots help lots as does my frame they dont disable me they let me get on with playing.

I learn and I laugh and I try to read books I dont need a special needs nursery what ever the books may say.

Im getting bigger and stronger all the time and my hearts a lot better now but Mummy and Daddy still worry when the drugs are stopped as they are scared I might be sick again but the doctors still say it wont happen.

I get less infections now as I have injections now to help me fight infections but I wish people didnt say I dont need magic cream as I dont understand I understand it hurts.

Mummy still insists on waking me at night for feeds but I cry and complain as I dont want them but Mummy still trys as the Doctors say she has too.

Im off to hospital next week I wonder what I will have to write about then

Joe