I had lots of What is? questions on Friday while trying to get respite out of the local authority for Joe.
What is his life expectancy?
10-19 years
What are your strengths and weaknesses as parents?
Weaknessess we are totally exhusted.
What would you like as respite?
Oooooh say a night a fortnight or a month.
What does his normal night look like?
up at 11.30pm up at 3.30/4.00am up at 5.30 and 6.30 plus 2hrly nappy changes.
Do you have any family support?
erm no.
Doesnt look like you will qualify but we will take him to panel and see.............
Lets just say Im not holding my breath.
2 comments:
I hope they do come through with something for you. What on earth do they want for someone to qualify?
Honesty Jax they want a child who is so sick they fall under NHS health funding so they dont want to pay out. Of course if I really cant cope they would find crisis resolution but its not the case, now can I go another 18 months on 4hrs sleep I wonder......
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