Thought this would be good from a memory point of view.
2.30am alarm goes off, give Joe 80mls of milk out of his bottle,change nappy go back to sleep.
5.00am give antibiotics to Joe, shower dress.
5.30am give Joe 80ls of milk and first lot of heart drugs change nappy.
5.45am try to drink a coffee and have breakfast with ark in peace.
sort bags Make up milk prepare rest of am drugs.
6.30am Heart drugs (again!)
7.15am Harry up next hours we get ready to leave for school, leave at 8.15
Harriet in school 9.00 to 12.15
during this time Joe has physio needs bloods taken I try to fit in home ed planning.
12.15 we leave school get the train home, Have lunch cheese sandwich and banana every day Harrys a creature of routinue.
This afternoon working on project on Grace Darling and RNLI, draw pictures to represent parts of graces life used ICT to type up labels and practice spelling.
Read Oxford reading tree book for school tomorrow.
Harriet does art while I do laudary give Joe feeds and meds.
Do spelling test for school and handwriting practice
We vary what we do each day but cover all national curriculum subjects each week with a montessori flavour.
the evenings more drugs milk feeds baths bedtime stories and bed for kiddywinks, I crawl into bed at 11.30pm and wait for the 2.30am alarm!
Its not that bad once you get used to doing five things at once and the lack of sleep.
A normal day is also umpteen phone calls and doing planning and record keeping for Harriet as well as the normal house stuff.................
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1 comment:
Just catching up on blogs. It's good to hear how you are getting on. Your day sounds amazingly busy - you must be so organized! Hope you sort things out with the hospital soon too, they don't sound very helpful :(
stella
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