If it didnt involve us it could almost be funny......

In a carry on film type of way.

The hospital have lost yes lost £350 worth of Joe drugs that were meant to mean we didnt have to go to the ward on Xmas day.

How do you lose drugs surely that cant be safe by any means at all.

Im beyond annoyed but anyway.

Harry Finished school last wed with an excellent report.

On Saturday we took both to christingle at Rochester catherderal, which Joe loved or rather he loved eating the sweets on the christingle.

We have seen pagan friends for yule and Harry is now sitting with daddy making a rag doll....

Watch this space for news about the drugs!

A Day in Our lives.........

Thought this would be good from a memory point of view.

2.30am alarm goes off, give Joe 80mls of milk out of his bottle,change nappy go back to sleep.
5.00am give antibiotics to Joe, shower dress.
5.30am give Joe 80ls of milk and first lot of heart drugs change nappy.
5.45am try to drink a coffee and have breakfast with ark in peace.

sort bags Make up milk prepare rest of am drugs.

6.30am Heart drugs (again!)

7.15am Harry up next hours we get ready to leave for school, leave at 8.15

Harriet in school 9.00 to 12.15

during this time Joe has physio needs bloods taken I try to fit in home ed planning.

12.15 we leave school get the train home, Have lunch cheese sandwich and banana every day Harrys a creature of routinue.

This afternoon working on project on Grace Darling and RNLI, draw pictures to represent parts of graces life used ICT to type up labels and practice spelling.

Read Oxford reading tree book for school tomorrow.

Harriet does art while I do laudary give Joe feeds and meds.

Do spelling test for school and handwriting practice

We vary what we do each day but cover all national curriculum subjects each week with a montessori flavour.

the evenings more drugs milk feeds baths bedtime stories and bed for kiddywinks, I crawl into bed at 11.30pm and wait for the 2.30am alarm!

Its not that bad once you get used to doing five things at once and the lack of sleep.

A normal day is also umpteen phone calls and doing planning and record keeping for Harriet as well as the normal house stuff.................

Have you ever thought..............

You are surrounded by people who are eant to know there job but dont.

The local hospital once again dont get Joe which has left us in more than one sticky situation, and its normally e that rally the troops chases the doctors and explains that a baby with open bleeding rashes and a bad white blood cell count is at high risk of blood poisioning surely this is basic stuff surely.

Harrys good and the small school is excellent shes keeping up well and reading like a pro........projects Im doing with her at the moment include the RNLI and houses and homes lots of xmas stuff too.

The above photo is both of the while Joe was in hospital in March up to date photos to follow.